GDPR Requirements for Biobanking Activities Across Europe


GDPR Requirements for Biobanking Activities Across Europe

Perugia, Congress – May 25-26, 2022


The conference "GDPR Requirements for Biobanking Activities Across Europe" will be a wonderful opportunity to meet online and in-person colleagues and other academics in the historic city of Perugia for the first time in many months to discuss topics related to main legal challenges in the management of Biobanks.

This year the University of Perugia and the National Research Council (Institute IFAC) with the collaboration of ESBB will be offering the conference as a two-day in-person event. We will also be running a virtual event to enable those who cannot travel to Perugia to participate and present their work.

Pre-registration is mandatory since it grants you free admission to "GDPR Requirements for Biobanking Activities Across Europe".

There will be two separate registrations:

  • reservations for the virtual event will give you access to the virtual conference if you are an ESBB member for two days;
  • in-Person reservation will give you access to both the in-person and virtual events (please write an email to: Questo indirizzo email è protetto dagli spambots. È necessario abilitare JavaScript per vederlo.)

The organizers expect all conference participants to adhere to local covid guidance at the time of the event and will inform you about the national preventive measures in place in advance.

About the conference "GDPR Requirements for Biobanking Activities Across Europe"

The increasing number of research biobanks and the importance of their role in supporting medical and biological research have resulted in Action aims for the development and sharing of biobanking best practices and benchmarking standards which guarantee the fundamental rights of the donors/patients and increase trust in the system while not unnecessarily aggravating biomedical research. The creation and management of Biobank collections cause several ethical and juridical issues and may provoke societal concerns. The need to manage these resources efficiently and within strict legal boundaries is paramount given the genetic and protein information which is generated and which is linked to other genetic, genomic and proteomic databases or other types of databases, such as clinical records.

The main legal challenges in the management of Biobanks are to find ways of protecting the interests of individuals while at the same time making essential information available for medical research. The Conference try to answer the burning questions on data protection regarding biobanks and to understand the effective operation of the rules related to biomedical research paying attention to the activities of the national legislatures of the 27 Member States in the field of scientific research, because of the EU multilevel system has an impact on biobanking activity.


Scientific Program